Determinants of adherence and consequences of the transition from adolescence to adulthood among young people with severe haemophilia (TRANSHEMO): study protocol for a multicentric French national observational cross-sectional study

Noémie Resseguier 1 Natacha Rosso-Delsemme Any Beltran Anzola Karine Baumstarck 2 Vanessa Milien Laurent Ardillon Sophie Bayart 3 Claire Berger Marie-Anne Bertrand Christine Biron-Andréani 4 Annie Borel-Derlon 5 Sabine Castet Pierre Chamouni 6 Ségolène Claeyssens Donadel Emmanuelle de Raucourt 7 Dominique Desprez Céline Falaise 8 Birgit Frotscher 9 Valérie Gay 10 Jenny Goudemand 11 Yves Gruel 12 Benoît Guillet 13 Annie Harroche Abel Hassoun Yoann Huguenin Thierry Lambert Aurélien Lebreton 14 Anne Lienhart Michèle Martin 15 Sandrine Meunier 16 Fabrice Monpoux Guillaume Mourey 17 Claude Negrier 18 Philippe Nguyen Placide Nyombe Caroline Oudot 19 Brigitte Pan-Petesch 20, 21, 22 Benoit Polack 23 Anne Rafowicz Antoine Rauch Delphine Rivaud Pascale Schneider 24 Alexandra Spiegel Cecile Stoven Brigitte Tardy 25 Marc Trossaërt 26 Jean-Baptiste Valentin Stéphane Vanderbecken Fabienne Volot Anne Voyer-Ebrard Bénédicte Wibaut Tanguy Leroy 27 Thomas Sannie Hervé Chambost 28 Pascal Auquier 29
23 TIMC-IMAG-TheREx - Thérapeutique Recombinante Expérimentale
TIMC-IMAG - Techniques de l'Ingénierie Médicale et de la Complexité - Informatique, Mathématiques et Applications, Grenoble - UMR 5525
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Noémie Resseguier, Natacha Rosso-Delsemme, Any Beltran Anzola, Karine Baumstarck, Vanessa Milien, et al.. Determinants of adherence and consequences of the transition from adolescence to adulthood among young people with severe haemophilia (TRANSHEMO): study protocol for a multicentric French national observational cross-sectional study. BMJ Open, BMJ Publishing Group, 2018, 8 (7), pp.e022409. ⟨10.1136/bmjopen-2018-022409⟩. ⟨hal-02057702⟩

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